Anyone Here Got IBD or Crohns?
 

Anyone got IBD (Inflammatory Bowel Disease) or Crohns Disease?

What kind of symptoms do you have and how do you manage it?
What kind of diet keeps you stable?

I have a horrible case of Crohns. It is not the same as IBS.

With Crohns it can be non-stop infections, abscesses, intestional blockages, bowel recissions, etc. With IBS you poop a lot.

Diet doesn't affect my Crohns other than I have to stay away from ruffage.

My mom has the IBD,she is on medication but still major diarrhea especially in the mornings.There isn't any cure for it but medication helps a little

Crohns seems to vary alot person to person in severity and triggers.

I have 2 friends, both sisters, that have Crohns. One eats really spicy foods all the time, one can't. One gets reall bad intestinal discomfort and ugent attacks, the other doesn't seem to have any pain but has alot of bleeding.

As far as the IBD / IBS probiotics seem to help alot.

I had a really bad GI infection that went unchecked for 2 years due to misdiagnosis. I couldn't keep any food down or in for a while. Not quite the same as IBS / IBD but alot of the same symptoms. On my 3rd GI doctor I started taking this http://www.vsl3.com/ and it worked wonders. Not cheap, but also not something you should buy unless you're really ill either. It wasn't an overnight change but it gave me my life back for sure.

I do and pretty much just deal with it. I don't want to give up eating the things I like, even with the discomfort.

I had Gonorrhea before, does that count?

This guy, Dr Mercola, is always streets ahead of the rest, you get info from him 7 years before it appears on the main news. I've been reading his info since back in the day. Also as a general rule keep away from drugs if possible; capitalism wants repeat customers not a cure :2 cents:

Here's what he says on IBS http://articles.mercola.com/sites/ar...art-three.aspx

On a personal note, I knew a girl with IBS, she never bothered having breakfast. Obviously breakfast is as they say "The Most Important Meal of the Day" as it's a "Break from the Fast" i.e you've been fasting through the night so you are in desperate need to eat again. Your stomach is meant to have a regular flow of food going through it to ensure the food gets pushed through to the next stage of digestion after the correct amount time; you don't want food staying in one particular stage for too long, that's when things go wrong. Timing is important, things go wrong when the timing is out.

So, don't skip meals, especially not breakfast, but there are a number of triggers so perhaps it's something else for you.

As for Crohns disease, that's what smart people get; it's the sign of a good brain

No + you are an idiot.

I have had crohns since I was 14 years old. I am now 28 years old. GET ON REMICADE infusion if you can. It was a miracle for me. Interestly I seldom have crohns pains. I had one flare and still had to go to the hospital however it was minor. Instead of a two week stay as usual it was a three day stay.

PS. I eat ruffage like salads and fruit again daily, can you believe it? Remicade is awesome but sort of new and can potentially cause lymphoma rarely so it's a give and take. You GOTTA read about it. MUST read more info for yourself if you have crohns!! Good luck to everyone.

I can't believe the poo guy hasn't made an appearance in this thread yet.

Remicade isn't new. I started that in the very late 90's or early '00's. Unfortunately, it works for awhile and then I have to take a break.

I have friends and family with both. IBS/IBD can be "controlled" more with low fiber, low caffeine diets. Crohns on the other hand usually diet will only make a slight difference

my brother had Crohns pretty bad and nothing helped. he finally got sick of it and got the surgery. proctocolectomy and ileostomy I believe but he is million times better off now then he was before. Glad hes doing great and awesome to have my brother back :thumbsup

I had "the surgery" in 2008. Sadly, it was a bad surgery and caused new problems. Main symptoms are better but have new ones and the infections are still frequent.

yeah, I have IBS and a gluten and casein intolerance... Unfortunately, a gluten flare up triggers more bouts of IBS panic...

Drug/Supplement wise:
l-glutamine seems to help, as do beta blockers (propanolol) and the occasional ativan....
Of course, a good dose of probiotics like the vsl-3 mentioned above, or Bio K+ makes a large difference...

New-age crap:
now... I never was into the 'new age'/homeopathic type ideas, but there's some 'self-hypnosis'/guided mediation that IBS people swear of called 'IBS Audio Program 100'. I haven't had huge results from it (day 70ish), but I think it's helped a little... Tried it as a last resort...
Many, many people love it...

How does an infection affect you?
What are the symptoms and how long do they last?
How do you treat it?

Would be interested to hear from others....

LOL this had me cracking up for real

Bro a 20 year old drug is considered new.

Excuse me ten year old drug.

This is a shitty thread *wonk*wonk*wonnnnnnk* ;-)

A good friend of mine has Crohns and it certainly is no fun at all.

I've got Chrons disease. Had 6" of my small intestines removed in '06. I take 6 asacol a day. A few weeks out of the year I go on Entocort (steroids).

Ever since my surgery I'd say I'm a normal person minus the occasional flareup.

TAKE PROBIOTICS! Sedona Labs makes good ones. Take 2x or 3x the recommended.
TAKE BOVINE COLOSTRUM.
TAKE FISH OIL.

STOP eating products with GLUTEN. If it gets better you know it's a gluten allergy. If it doesn't get better STOP eating DAIRY products.

My Chrons was started by being on antibiotics for 2.5 years. IBS runs in my family.

Yeah, but it's not exactly new to me if I've been on it for a decade. I was an early adopter though because my great aunt saw a newspaper about it long before it was common. Getting that shit approved by the insurance company was a huge pain in the ass. As far as I know, it's now considered a common treatment and there isn't a fight put up.

Ugh, the steroids. The thing I hated most. At my worst I was on 40 MG of prednisone a day and did that for a few years in my teens. Really fucked me up, I got the false sense of well being side effect and thought I was invincible.